At Bruck Syndrome, we aim to provide comprehensive health support for individuals and families affected by Bruck syndrome. As a registered charity (no. 1216729), we offer:
Information and Resources: Clear, reliable information on medical treatments and management strategies for Bruck Syndrome.
Financial Assistance: A grant-making programme to help cover the costs of specialised equipment and therapies. In accordance with our Internal Financial Controls Policy, payments for beneficiary grants will effectively be made directly to the supplier or provider upon receipt of an invoice, rather than to the individual applicant, to minimise diversion risk and ensure funds are used correctly.
Counselling Support (Referral): Recognising the need for professional emotional support, we will not provide counselling directly. Instead, we will operate a referral model, signposting families to a vetted list of independent, professionally accredited counsellors. We may offer grant funding to help cover the costs of these sessions
Join Our Discord Support Group
Join our Discord community to connect with others affected by Bruck syndrome. The group is actively moderated by trained volunteers to ensure it remains a safe, confidential, and supportive space for everyone. Here’s how to get involved::
Step 1: Create a Discord Account: If you don’t already have one, sign up for a free Discord account at discord.com.
Step 2: Join Our Server: Click on the invite link to join our Discord server: https://discord.gg/Y3gVmgfCKT
Step 3: Introduce Yourself: Once you’re in, introduce yourself in the #introductions channel. Share your story, ask questions, or simply connect with others who understand what you’re going through.
Step 4: Participate: Engage in discussions, join scheduled chats, and take part in community events. Our Discord server is a safe space for sharing experiences, offering support, and finding solidarity.