Bruck Syndrome Charity 

Bruck Syndrome is a rare genetic disorder characterised by a combination of brittle bones (osteogenesis imperfecta) and joint contractures. It typically manifests in infancy or early childhood, affecting bone strength and joint mobility.

At Bruck Syndrome, our purpose is to enhance the lives of individuals and families affected by Bruck syndrome through comprehensive support, education, advocacy, and research. We provide financial aid, medical treatments, and therapies, educate the public and healthcare professionals, advocate for rights and research advancements, raise awareness to reduce stigma, and promote social inclusion within our community.

At Bruck Syndrome, we’ve made significant strides in supporting individuals and families affected by Bruck syndrome. We’ve provided crucial financial support for medical treatments and therapies, educated healthcare professionals and the public through workshops and seminars, advocated for the rights of those with Bruck syndrome on local and international platforms, supported impactful research initiatives, raised awareness through effective campaigns, and fostered social inclusion by creating opportunities for community participation.