As we actively raise vital funds to officially launch our core services, we are absolutely thrilled to share a massive milestone with you: Bruck Syndrome has been officially recognised by HM Revenue & Customs (HMRC) as a charity for tax purposes. We are now formally established as a Charitable Incorporated Organisation (CIO), with our official charity reference number (ZD64797) taking effect from February 2026.

What this means for our community

Our ultimate aim is to relieve the need and protect the health of individuals, their families, and carers affected by Bruck Syndrome. Earning our official charity status is a foundational step that directly strengthens our ability to deliver on our key charitable aims, including:

• Maximising Every Donation: Being recognised for tax purposes allows us to eventually claim back tax on eligible donations (such as through Gift Aid), meaning the generous support we receive will go even further toward funding our vital services.

• Building Trust and Credibility: Formal recognition from HMRC demonstrates that we are a regulated and transparent organisation. This cements trust with our donors, partners, and the medical professionals we aim to collaborate with.

• Unlocking New Opportunities: Operating as an official CIO opens doors to crucial new avenues of funding, including grants and trusts that are only available to registered charities, giving us the resources we need to advocate for research and promote knowledge.

Building a better future, together

We have a clear vision for the future: a world where no one feels alone, everyone has access to help, and knowledge leads to better care. Securing our official status as a Charitable Incorporated Organisation is a huge step toward making that vision a reality for children like Elisa and families everywhere facing this diagnosis.

Thank you to everyone who is supporting our launch. Stay tuned to "Our Journey" for more updates soon!

As we actively raise vital funds to officially launch our core services, we are absolutely thrilled to share a massive milestone with you: we are officially a member of Genetic Alliance UK.

What this means for our community

Our ultimate aim is to relieve the need and protect the health of individuals, their families, and carers affected by Bruck Syndrome. Joining Genetic Alliance UK connects us to a powerful national network of charities, advocates, and experts dedicated to supporting those with rare genetic conditions.

This partnership directly strengthens our ability to deliver on our key charitable aims, including:

• Raising Awareness: We can reach a wider audience to highlight the realities of Bruck Syndrome and its implications for individuals and their families.

• Promoting Knowledge: Being part of this alliance helps us promote understanding and acknowledgment of the condition within the medical profession and wider support services.

• Encouraging Research: It opens doors to collaborate and advocate for research into potential treatments.

Building a better future, together

We have a clear vision for the future: a world where no one feels alone, everyone has access to help, and knowledge leads to better care. Partnering with Genetic Alliance UK is a huge step toward making that vision a reality for children like Elisa and families everywhere facing this diagnosis.

Thank you to everyone who is supporting our launch. Stay tuned to "Our Journey" for more updates soon!